Turners with Big Boobs

I have huge breasts. I would happily trade them in for smaller, more perky ones. Not that I'm complaining, they suit me just fine. My point is just to show that there is so much wrong information getting to parents and girls with Turner's.

I am frustrated at how much wrong information is on the web, and how many people write reports from a place of authority and scientific study that are untrue and potentially harmful. One post riled me up today, here's part of it.

"A person with this syndrome is a female in appearance, but she doesn't develop like one. She never really sexually develops, she is infertile, she develops physical abnormalities like hair loss and webbing of the neck, tumors and heart disease are common, and she often struggles with learning disabilities. This is a really sad life."

He goes on to question how we can have a sense of our identity if we do not have intelligence or clear sexual characteristics. As if to say that we can't even tell if we are women/girls or not.
Even if you never hit puberty and develop normally, I'm pretty sure most people know without a doubt what sex they are.

I'm glad there were lots of women to respond to this post with their own experiences showing his errors, but one woman having recently given birth to a girl with TS accepted it and wondered how much this disorder would affect her child as she grew up. She probably expects worse than reality because of this post. Girls with TS do not have higher chances of mental retardation and learning disabilities. I not sure I buy the more commonly accepted notion that we struggle more with math either, but I will have to research where that one comes from.

I called this blog Turner's with Big Boobs, because I'm running across all sorts of things that say ALL girls with TS do not develop, period, end of story. And I am a living testimony that this is not the case.
My doctor discussed estrogen treatment with me, and said we could start it after I finished with my growth hormone shots. Since it would counteract the growth, I had to wait until somewhere around 17 years of age to begin the estrogen treatment.
I was basically indifferent, I wasn't traumatized by being flat chested, but figured boobs would be nice and there were probably other benefits to having normal estrogen levels in my body.
But by the time I was fully grown, I hit puberty on my own and never took a single dose of estrogen. At age 17 my period came - to me and my family, and my doctor's surprise.
My breasts developed, and everything else you would expect from a girl, just a little later.

Granted, I am a unique case and probably this doesn't happen to the majority of girls with TS.
I still want people to know that these cases exist.
There are girls with a mosaic form of TS. This means that not all of their cells are missing the sex chromosome. This may explain why the severity of symptoms vary so much from person to person.
I wear a 32 D (and now that I'm pregnant, I'd say it's more like a DD) bra. I have fully functioning sexual organs. I've had regular periods since I was 17. I have successfully gotten pregnant without in vitro fertilization.

Just want the world to know Turner's lives are not sad, they are not all as this man described. And I don't want any mothers finding out their child has Turner's to freak out, thinking they won't be successful or bright, or be physically deformed. I don't want them to think their child's life will be forever sad and full of strife.

The worst thing we can do to girls diagnosed with TS is label them and lower our expectations for their life, or make them feel inferior. There is nothing different in our capabilities, our brain power, our sexual identity as women, or our ability to have meaningful relationships, etc.